International PCD Physiotherapy Network
The International PCD Physiotherapy Network (IPCDPN) is a global community of physiotherapists and respiratory therapists dedicated to improving care for people with primary ciliary dyskinesia (PCD). Founded during the 2017 BEAT-PCD Training School, the network welcomes clinicians at every stage of their PCD experience—from established specialists to those caring for their very first patient.
The network provides opportunities to connect with colleagues worldwide, discuss clinical challenges, share best practices, and exchange educational resources, helping to strengthen physiotherapy care across the international PCD community.
Since 2020, the IPCDPN has hosted a series of educational webinars covering topics such as COVID-19 care, upper airway management, and improving treatment adherence. These webinars are open to all, with recordings available to network members.
Membership is free. To join the network or find out more, please contact Lynne Scholfield.
Upcoming event
Recording of past webinars
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This video contains sessions on virtual patient assessment. Jill Roper's presentation slide unfortunately have not recorded correctly but the audio is available.
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This is the International PCD Physio Network's Second Webinar. This session included:
Introduction
The importance of the upper airway in PCD, Professor Jean-Francois Papon Head of Service , ENT Department and Cervico-Maxilo-Facial Surgery , Bicêtre Hospital, France Dysfunctional breathing Georgie Housley, Highly specialist respiratory physiotherapist, Royal Brompton Hospital, UK
Breakout rooms (not included in video)
Conclusion
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Building habits for self-care: the secret of a long life (for all of us). Dr Martin Wildman Consultant Respiratory Physician Sheffield Teaching Hospitals NHS Trust, UK Motivating patients to adhere to physiotherapy in PCD Dr Alistair JA Duff Honorary Clinical Associate Professor | Consultant Clinical Psychologist Head of Psychological Services Leeds Teaching Hospitals NHS Trust, UK
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Let's talk physio: a patient perspective Patient representatives from PCD Support UK
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Part 2 of our engagement with treatments series features talks from: Liz Shepherd and Tom Meredith, Physiotherapists from the Southampton PCD services, How do I support my patients with their treatment adherence – lessons we have learned Prof Alexandra Quittner, Senior Scientist, Behavioural Health Systems Research, Miami, Florida Interventions to improve airway clearance in individuals with PCD.
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People with PCD can experience problems with continence when coughing, similar to people with other chronic lung conditions. This webinar covers: problems people can experience, assessment and screening for continence problems, and physiotherapy management. We have two great speakers: Gerard Greene, a Specialist Pelvic Health Physiotherapist from Birmingham & London, UK Hannah Wilkins, a Specialist Paediatric Respiratory Physiotherapist from Southampton, UK.