We are excited to share details of the next IPCDPN webinar: 
Measuring outcomes in PCD
Tue 29 Apr 2025 1:00 PM - 3:00 PM BST Online, Teams

Programme:

1:00-1:10 Welcome and interactive survey

1:10-1:45 The use of outcome measures in PCD research, Dr Bruna Rubbo

1:45-2:30 Outcome measures for airway clearance techniques in chronic suppurative lung disease, Dr Gemma Stanford

2:30-3:00 Discussion

Register for your free place here

Join us for the next IPCDPN webinar to find out more about current research projects happening in the world of PCD!

Register here

13.00 - Introduction

13.05 - 'The latest in exercise research for people with PCD'

Anne Marie Lee, Associate Professor at Monash University, in Melbourne, Victoria (Australia)

13.35 - 'Assessing the effects of personalised airway clearance techniques in children with PCD'

Lynne Schofield, Paediatric PCD Physio and Clinical Doctoral Research Fellow. Leeds Teaching Hospitals and University of Sheffield (UK).

14.05 - 'Spring-cleaning the PCD airway: presentation of CLEAN-PCD results and discussion of geographical differences in standards of ACT'

Dr. Felix C. Ringshausen, Senior Physician, Hannover Medical School (Germany)

14.30 - 'Status of PCD physiotherapy in the USA'

Michael Davis, Associate Professor of Pediatrics, Riley Hospital for Children at Indiana School of Medicine (USA)

14.55 - Close

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14:00 - Introduction

14:05 - Pelvic Health and respiratory conditions : Bridging the gap (Gerard Green, Specialist Pelvic Health Physiotherapist, Birmingham & London, UK)

15:00 - Can young people have symptoms too? An interactive discussion (Hannah Wilkins, Specialist Paediatric Physiotherapist, Southampton, UK)

15:55 - Close

Join us for the next IPCDPN Webinar! We have speakers from across the world sharing their experiences of working with people with PCD.

Programme

13:00 - 13:10: Welcome and introduction

13:10 - 14:25: Exploring PCD practice around the world

Esta Tannenbaum - Australia

Sandra Gursli , Tonje Klatte & Frøydis Folkvord - Norway

Kirstin Unger - Scotland

Aslihan Cakmak & Mrs Kılıç - Turkey

Isobel Pogorelow Morales - Chile

Paolo Buonpensiero - Italy

Stevie Peake - England

Priscilla Kilts - USA

Katarina Hellberg & Anna-Lena Lagerkvist - Sweden

14:25 - 14:55: Questions and discussion

14:55 - 15:00: Closing statements

Register here.

Please join us for the 4th International PCD Physiotherapy Network webinar - the second part of our adherence series. The webinar will take place via ZOOM on Thursday 28 April 2022 14:00 - 16:00 CET

Programme (titles TBC)

14:00 - Introduction

14:05 - Tom Meredith & Liz Shephard, Specialist PCD Physiotherapists, UK

14:45 - Professor Alexandra Quittner, Behavioural Health Systems Research

15:25 - Break out rooms: adherence to physiotherapy treatments in PCD, paediatrics and adults.

15:55 - Close

Additional information and registration is available here.

2nd Physiotherapy Network (IPCDPN) Webinar “Breathing well in PCD: from nose to diaphragm”

Tuesday 18th May 2021, via Zoom

1 PM - 3 PM BST

2 PM - 4 PM CET

The webinar is primarily aimed at physiotherapists working with people with PCD. Nevertheless the event is also open to non-physiotherapists that would like to attend.

Webinar Agenda:

13.00 - Introduction

13.10 - The importance of the upper airway in PCD, Professor Jean-Francois Papon

Head of Service , ENT Department and Cervico-Maxilo-Facial Surgery , Bicêtre Hospital, France

13.45 - Dysfunctional breathing, Georgie Housley

Highly specialist respiratory physiotherapist, Royal Brompton Hospital, UK

14.30 - Breakout rooms

14.50 - Conclusion

Please follow the Eventbrite link below to register for this event -

https://www.eventbrite.co.uk/e/breathing-well-in-pcd-from-nose-to-diaphragm-tickets-151936802065